ALS source registry
These sources define the first monitoring layer for Amyotrophic Lateral Sclerosis. Helixera uses them to spot research, trial, regulatory, company, expert, and community signals while staying out of medical-advice territory.
24
Public sources
6
Categories
0
Medical advice claims
Regulatory
dailymed.nlm.nih.gov
Current FDA Structured Product Label records and label version metadata.
Why it is in the registry
Official U.S. National Library of Medicine label repository.
Used for source-linked intelligence only.
Open sourceRegulatory
api.fda.gov
Official recall and enforcement reports matched to tracked therapies.
Why it is in the registry
Official FDA enforcement dataset exposed through openFDA.
Used for source-linked intelligence only.
Open sourceCompany Updates
sec.gov
Recent official filings for publicly traded companies tracked by disease.
Why it is in the registry
The SEC is the primary source for public-company filings.
Used for source-linked intelligence only.
Open sourceResearch
pubmed.ncbi.nlm.nih.gov
Indexed biomedical literature across Helixera launch diseases.
Why it is in the registry
Primary public literature index operated by the National Library of Medicine; used to identify papers, reviews, publication dates, and source abstracts.
Used for source-linked intelligence only.
Open sourceClinical Trials
clinicaltrials.gov
Trial registrations, recruiting status, study changes, sponsors, and trial locations.
Why it is in the registry
Primary U.S. public registry for clinical trials; useful for tracking new studies, status changes, phase, enrollment, and sponsor movement.
Used for source-linked intelligence only.
Open sourceResearch
api.crossref.org
DOI registration metadata and publication relationships for disease-relevant scholarly records.
Why it is in the registry
Crossref is the primary open DOI metadata registry and is used for identifier resolution rather than clinical interpretation.
Used for source-linked intelligence only.
Open sourceResearch
europepmc.org
Biomedical abstracts, identifiers, citations, MeSH metadata, and lawful open-access availability.
Why it is in the registry
Europe PMC is an official EMBL-EBI life-science literature service with a documented REST API.
Used for source-linked intelligence only.
Open sourceRegulatory
fda.gov
Public regulatory announcements, approvals, safety communications, labels, and meeting materials.
Why it is in the registry
Primary U.S. regulatory source for drug, biologic, and safety information; essential for regulatory movement and approval-context signals.
Used for source-linked intelligence only.
Open sourceRegulatory
open.fda.gov
FDA public datasets and APIs for labels, adverse events, recalls, and related regulatory data.
Why it is in the registry
Machine-readable FDA data source that supports repeatable ingestion and source-linked regulatory monitoring.
Used for source-linked intelligence only.
Open sourceRegulatory
ema.europa.eu
European regulatory opinions, medicine assessments, safety updates, and committee materials.
Why it is in the registry
Primary European regulatory source that complements FDA tracking for globally relevant treatment and safety movement.
Used for source-linked intelligence only.
Open sourceExpert Insights
ninds.nih.gov
Federal research and disease-context updates for neurological and rare neurological conditions.
Why it is in the registry
Primary government source for research context, disease education, funding, and expert-level public summaries.
Used for source-linked intelligence only.
Open sourceResearch
api.reporter.nih.gov
Official NIH research project, investigator, institution, funding, and project-date metadata.
Why it is in the registry
NIH RePORTER is the official public database for NIH-funded projects and durable grant identifiers.
Used for source-linked intelligence only.
Open sourceCommunity Signals
iamals.org
ALS community, patient-led advocacy, policy movement, and disease-community signals.
Why it is in the registry
Founder-approved trusted ALS source for patient-led community signals and advocacy context.
Used for source-linked intelligence only.
Open sourceCompany Updates
biospace.com
Biotech company news, financing, partnerships, pipeline updates, and industry movement.
Why it is in the registry
Founder-approved trusted publication for biotech and life-science company signals relevant to disease intelligence.
Used for source-linked intelligence only.
Open sourceCompany Updates
company newsrooms
Official company newsroom URLs awaiting per-feed verification.
Why it is in the registry
First-party company communications are useful when clearly labeled and checked against primary records.
Used for source-linked intelligence only.
Open sourceResearch
api.biorxiv.org
Disease-relevant biology preprints and server-reported links to later journal publication.
Why it is in the registry
Official bioRxiv API with explicit version, license, category, DOI, and publication-match metadata.
Used for source-linked intelligence only.
Open sourceResearch
biorxiv.org / medrxiv.org
Preprint research before peer review.
Why it is in the registry
Preprints can surface early research signals before formal publication, but must be labeled clearly and treated as provisional.
Used for source-linked intelligence only.
Open sourceResearch
api.biorxiv.org
Disease-relevant health-science preprints and server-reported links to later journal publication.
Why it is in the registry
Official medRxiv API with explicit version, license, category, DOI, and publication-match metadata.
Used for source-linked intelligence only.
Open sourceResearch
nature.com
Peer-reviewed research and review coverage across biomedical fields.
Why it is in the registry
Trusted scientific publisher useful for high-signal papers, reviews, and disease-field context.
Used for source-linked intelligence only.
Open sourceResearch
nejm.org
Peer-reviewed clinical research, reviews, and clinical-trial publications.
Why it is in the registry
High-trust medical journal for major clinical studies and disease-relevant evidence.
Used for source-linked intelligence only.
Open sourceResearch
thelancet.com
Neurology-focused peer-reviewed research, reviews, and disease-field context.
Why it is in the registry
High-trust neurology journal relevant to Helixera neurodegenerative and rare neurological launch diseases.
Used for source-linked intelligence only.
Open sourceResearch
cell.com
Peer-reviewed biomedical and translational research across disease areas.
Why it is in the registry
Trusted scientific publisher for mechanistic, translational, and disease-biology signals.
Used for source-linked intelligence only.
Open sourceResearch
jamanetwork.com
Peer-reviewed clinical research, reviews, and medical commentary.
Why it is in the registry
Trusted medical journal network for clinical and health-system context.
Used for source-linked intelligence only.
Open sourceCompany Updates
fiercebiotech.com
Biotech business, pipeline, deal, and financing coverage.
Why it is in the registry
Useful secondary publication for spotting company movement and biotech-market context.
Used for source-linked intelligence only.
Open source