Disease trackers

Trusted source registry

The sources Helixera watches first.

Helixera turns fragmented disease data into source-linked intelligence. The registry defines what we watch, why it is trusted, and where human review needs extra caution.

Public sources

24

Active

9

Watch

15

Categories

6

Regulatory

5 sources

DailyMed

dailymed.nlm.nih.gov

Primary

Current FDA Structured Product Label records and label version metadata.

Official U.S. National Library of Medicine label repository.

Covers 10 launch diseases

Open source

FDA Drug Enforcement Reports

api.fda.gov

Primary

Official recall and enforcement reports matched to tracked therapies.

Official FDA enforcement dataset exposed through openFDA.

Covers 10 launch diseases

Open source

FDA

fda.gov

Watch

Public regulatory announcements, approvals, safety communications, labels, and meeting materials.

Primary U.S. regulatory source for drug, biologic, and safety information; essential for regulatory movement and approval-context signals.

Covers 10 launch diseases

Open source

openFDA

open.fda.gov

Primary

FDA public datasets and APIs for labels, adverse events, recalls, and related regulatory data.

Machine-readable FDA data source that supports repeatable ingestion and source-linked regulatory monitoring.

Covers 10 launch diseases

Open source

European Medicines Agency

ema.europa.eu

Watch

European regulatory opinions, medicine assessments, safety updates, and committee materials.

Primary European regulatory source that complements FDA tracking for globally relevant treatment and safety movement.

Covers 10 launch diseases

Open source

Company Updates

4 sources

SEC EDGAR

sec.gov

Primary

Recent official filings for publicly traded companies tracked by disease.

The SEC is the primary source for public-company filings.

Covers 3 launch diseases

Open source

BioSpace

biospace.com

Watch

Biotech company news, financing, partnerships, pipeline updates, and industry movement.

Founder-approved trusted publication for biotech and life-science company signals relevant to disease intelligence.

Covers 10 launch diseases

Open source

Company Newsrooms

company newsrooms

Watch

Official company newsroom URLs awaiting per-feed verification.

First-party company communications are useful when clearly labeled and checked against primary records.

Covers 3 launch diseases

Open source

Fierce Biotech

fiercebiotech.com

Watch

Biotech business, pipeline, deal, and financing coverage.

Useful secondary publication for spotting company movement and biotech-market context.

Covers 10 launch diseases

Open source

Research

12 sources

PubMed

pubmed.ncbi.nlm.nih.gov

Primary

Indexed biomedical literature across Helixera launch diseases.

Primary public literature index operated by the National Library of Medicine; used to identify papers, reviews, publication dates, and source abstracts.

Covers 10 launch diseases

Open source

Crossref

api.crossref.org

Primary

DOI registration metadata and publication relationships for disease-relevant scholarly records.

Crossref is the primary open DOI metadata registry and is used for identifier resolution rather than clinical interpretation.

Covers 10 launch diseases

Open source

Europe PMC

europepmc.org

Primary

Biomedical abstracts, identifiers, citations, MeSH metadata, and lawful open-access availability.

Europe PMC is an official EMBL-EBI life-science literature service with a documented REST API.

Covers 10 launch diseases

Open source

NIH RePORTER

api.reporter.nih.gov

Primary

Official NIH research project, investigator, institution, funding, and project-date metadata.

NIH RePORTER is the official public database for NIH-funded projects and durable grant identifiers.

Covers 10 launch diseases

Open source

bioRxiv

api.biorxiv.org

Watch

Disease-relevant biology preprints and server-reported links to later journal publication.

Official bioRxiv API with explicit version, license, category, DOI, and publication-match metadata.

Covers 10 launch diseases

Open source

bioRxiv / medRxiv

biorxiv.org / medrxiv.org

Watch

Preprint research before peer review.

Preprints can surface early research signals before formal publication, but must be labeled clearly and treated as provisional.

Covers 10 launch diseases

Open source

medRxiv

api.biorxiv.org

Watch

Disease-relevant health-science preprints and server-reported links to later journal publication.

Official medRxiv API with explicit version, license, category, DOI, and publication-match metadata.

Covers 10 launch diseases

Open source

Nature Portfolio

nature.com

Watch

Peer-reviewed research and review coverage across biomedical fields.

Trusted scientific publisher useful for high-signal papers, reviews, and disease-field context.

Covers 10 launch diseases

Open source

The New England Journal of Medicine

nejm.org

Watch

Peer-reviewed clinical research, reviews, and clinical-trial publications.

High-trust medical journal for major clinical studies and disease-relevant evidence.

Covers 10 launch diseases

Open source

The Lancet Neurology

thelancet.com

Watch

Neurology-focused peer-reviewed research, reviews, and disease-field context.

High-trust neurology journal relevant to Helixera neurodegenerative and rare neurological launch diseases.

Covers 5 launch diseases

Open source

Cell Press

cell.com

Watch

Peer-reviewed biomedical and translational research across disease areas.

Trusted scientific publisher for mechanistic, translational, and disease-biology signals.

Covers 10 launch diseases

Open source

JAMA Network

jamanetwork.com

Watch

Peer-reviewed clinical research, reviews, and medical commentary.

Trusted medical journal network for clinical and health-system context.

Covers 10 launch diseases

Open source

Clinical Trials

1 sources

ClinicalTrials.gov

clinicaltrials.gov

Primary

Trial registrations, recruiting status, study changes, sponsors, and trial locations.

Primary U.S. public registry for clinical trials; useful for tracking new studies, status changes, phase, enrollment, and sponsor movement.

Covers 10 launch diseases

Open source

Expert Insights

1 sources

NIH / NINDS

ninds.nih.gov

Watch

Federal research and disease-context updates for neurological and rare neurological conditions.

Primary government source for research context, disease education, funding, and expert-level public summaries.

Covers 6 launch diseases

Open source

Community Signals

1 sources

I AM ALS

iamals.org

Watch

ALS community, patient-led advocacy, policy movement, and disease-community signals.

Founder-approved trusted ALS source for patient-led community signals and advocacy context.

Covers 1 launch diseases

Open source